DURHANE WONG-RIEGER, PHD is Chair of Rare Disease International, Vice-Chair of Asia Pacific Rare Disease International, member of the Editorial board of the Patient-Patient Centred Outcomes Research, member of the global commission to End the Diagnosis Odyssey for Rare Diseases and member of Health Technology Assessment International Patient /Citizen Involvement Interest Group. In Canada, she is President & CEO of the Canadian Organization for rare Disorders, Chair of the consumer Advocare Network, President& CEO of the Institute for Optimizing Health Outcomes and Chair of Canadian Heart Patient Alliance. She is a certified health Coach.

Dr. Wong-Rieger has served on numerous health policy advisory committees and panels and is a member of Ontario’s Rare DiseaseImplementation Working Group and member of Genome Canada Steering Committee for the Rare Disease Precision Health Initiative.

Durhane has a PhD in psychology from McGill University and was a professor at the University of Windsor, Canada. She is a trainer and frequent lecturer and author of three books and many articles